Our family of three is soon to become a family of four. Consisting of a proud papa who just found out he has been accepted into medical school for the fall 2011, an eager mommy who is ready for a house full of boys, and excited big brother Jace, who is ready to share his toys, his room and his life with our sweet baby boy Jax Lee Hennon.
After going in for our third sonogram to make sure everything looks just right, we were given news on November 1,2010 that at 25 weeks along our baby boy has Trisomy 18 (T18), commonly known as Edwards Syndrome. T18 is a chromosomal defect that is lethal. Many times, children with T18 only live outside mommies warm and comfortably crammed belly from a few hours after birth to a few months. Some of the complications which have arisen from his T18 is that our sweet baby Jax has a severe heart condition as well as a stomach that is not functioning or an underdeveloped esophagus.
With this new information, we were left heartbroken and confused. After trying to take it all in, we realized that the doctors weren't going to help Jax with surgeries because fixing his organs would not fix the chromosomal problem. They can't do anything to lengthen his life, which is now completely in Gods Hands.
So here we are, humbled and completely brought to our knees before God, which is where we are glad to stay. He has been our source of strength in this life,and He has lit our path, and we will continue to depend on His direction. Day-by-day we rush through our busy schedules, check off our to-do list, make sure the house is clean, etc... Oh how we have quickly stopped in our tracks and seen how truly precious life is.
Our fight is now in prayer. We are asking for all who will listen to join us in continued prayer for the one true Physician to come and heal Jax.
I will be praying he will be cured! I have had others praying as well. We know that what doctors say is incurable is not truely incurable to those that are Christians because we have God on our side and He can cure ANYTHING! That is my prayer for little Jax!
ReplyDeleteJax Lee Hennon, I love you very much. God choose very blessed parents for you. Your daddys name is Marcus and your mommy is Rachel. You also have a big lovable brother named Jace. You have a big family, little one. We all wait patiently to meet you. I know you are ready for all the love we are going to give you. But no one will feel the love like mommy and daddy. I want to thank Jesus for you.And so many friends and family that hare praying for you. For now we let Jesus take special care of you until the day He decides its time for you to be born. I love you , Grandma Phyllis
ReplyDeleteBaby jax is already soooo loved, and think of how much prayer this little guy has already inspired. What a blessing. Rachel and marcus, you guys are so faithful and GOD IS GOOD!! Praying for u!
ReplyDeleteAfter meeting to discuss the original prsumptive diagnosis, I left confident in the strength manifest in your relationship as a couple as well as your faith.
ReplyDeleteNo one would have begrudged you the decision to maintain a silence as you traveled along this road. Instead, you have elected to bring the story of his young life and struggle into the light of a very public forum; it is fitting.
Writing a blog the past two years concerning my Mother's struggle with Parkinson's, I have found the process to be rewarding in ways I could have never imagined. Speaking only for myself, it has truly changed my view about much.
Our meeting truly humbled me; the story of this vibrant young couple and their son Jax is already changing lives.